Ongoing & Recruiting Clinical Trials in Pulmonary Fibrosis — Webinar
As part of World Pulmonary Fibrosis Awareness Month, we brought together members of the PF community for a dedicated webinar exploring the current landscape of ongoing and recruiting clinical trials in pulmonary fibrosis.
Clinical trials can be a complex topic, but this session was an opportunity to make the research landscape more accessible to people living with PF — helping patients and the wider community better understand what clinical research looks like today and what opportunities may be available.
Speaker: Dr. Toby Maher
Keck School of Medicine, University of Southern California (USC), Los Angeles, USA
Moderator: Dr. Vincent Cottin
Hôpital Louis Pradel, Hospices Civils de Lyon, Lyon, France
Patient Voice: John Solheim
President & Patient Representative, European Pulmonary Fibrosis Federation (EU-PFF), Norway
Putting patients at the heart of the conversation
Listen to Dr. Toby Maher engage directly with the patient community and explain a complex subject in a clear, simple and approachable way. His informative and positive presentation helped make the clinical trial landscape easier to understand, while keeping the discussion accessible and firmly focused on the needs and perspectives of patients.
The session also included a Q&A section, giving the patient voice an important place in the conversation.
John Solheim, as a patient representative, opened the webinar with a few words from his own perspective, bringing the patient voice into the discussion from the very beginning. During the Q&A, he also raised questions, challenged points and brought important issues to the table from a patient perspective — helping keep the discussion connected to the realities of living with pulmonary fibrosis.
Dr. Vincent Cottin, co-chairman of the PCT Workshop, expertly moderated the session, helping bring together the different voices around the patient and creating a space for an open and engaging discussion. His commitment to the PF community and to improving understanding of clinical research reflects the spirit at the heart of PCT: putting patients at the center of the conversation.